We've been sharing quotes from our families in the lead up to International Batten Disease Awareness Day this Thursday 9th June.
Julie, a bereaved mum who's son Mick had late onset CLN1. Julie shares precious memories about her late son and her hopes of what awareness will bring for future kids.
BDSRA Australia is dedicated to improving the lives and well-being of patients and families affected by Batten disease through family support, funding vital research, and advancing education and awareness.
