We continue to share quotes from our families in the lead up to International Batten Disease Awareness Day,  Thursday 9th June 2022.

Bettina, mum to Holley who has CLN2 Late Infantile Batten Disease, shares their story and her motivation to bring awareness to the plight of those affected.

BDSRA Australia is dedicated to improving the lives and well-being of patients and families affected by Batten disease through family support, funding vital research, and advancing education and awareness.