We continue to share quotes from our families in the lead up to International Batten Disease Awareness Day on June 9th.
Fiona, mum to Maxwell who has CLN2 Late infantile Batten Disease, shares an aspect about what the journey and raising awareness has meant for them.
BDSRA Australia is dedicated to improving the lives and well-being of patients and families affected by Batten disease through family support, funding vital research, and advancing education and awareness.
