In the lead up to International Batten Disease Awareness Day, we are sharing quotes from some of our brave families affected by Batten Disease.
The Hunter family share that despite the devastating prognosis, they will fight and advocate for their little girl Isla who is living with CLN1 Infantile Batten Disease.
BDSRA Australia is dedicated to improving the lives and well-being of patients and families affected by Batten disease through family support, funding vital research, and advancing education and awareness.
