June 9 is International Batten Disease Awareness Day
Each year, around the world, families, friends and advocates stand together in honour of children, young people and families affected by Batten disease - a rare and devastating neurodegenerative disorder.
Today also marks the official launch of our national
Forget Me Knot campaign, a simple but powerful act of remembrance and solidarity.
Today, tie a knot around your finger, your wrist, your mailbox or anywhere visible to help us remember the children we've lost, support those still fighting, and raise awareness for the urgent need for research and support.
If you live in the Northern Beaches in Sydney, visit Northern Beaches Council who will be lighting up Manly Town Hall on the corner of Whistler St & The Corso tonight to commemorate International Batten Disease Awareness Day.
Together, we can ensure that no family faces Batten disease alone.
Check out our webpages for:
Batten Awareness - https://bdsraaustralia.org/AwarenessDay/index.php
Forget Me Knot - https://bdsraaustralia.org/FMK/