This short video is a moving story of one family's devastating journey with Batten disease, told through the eyes of Noah. Our hope is that by sharing stories like this, we can raise awareness, educate and advocate for our Batten families around the world.

BDSRA Australia deeply values the collaboration we have with BDSRA North America and Batten Disease Family Association, UK. This collaboration helps us all on our mission to turn hope into a cure.