Thank you to the Hunter family who continue to rally with us to raise awareness for Batten disease. Last night's story was heartfelt and courageous! Each day is a step closer to the opening of the world's first CLN1 disease gene therapy clinical trial and we continue to work hard advocating for the inclusion of our Australian families. Well done to our own Dr Ineka Whiteman, Head of Research, Medical and Scientific Affairs for her contribution to this story!
You can see the news feature here - https://fb.watch/c0OY2RSxba/