BDSRA Australia is excited to launch a new monthly update, the Batten Brief, your go-to summary for all things research and medical in the world of Batten disease.
We know how vital it is for families living with Batten disease to feel informed, supported and to have timely access to clinical and scientific developments. The Batten Brief is our way of making sure you’re always in the loop!
Each month, we’ll bring you:
Key scientific research updates Industry developments and clinical trial updates New collaborations and initiatives Global progress in the Batten space
Whether you're family, a supporter, partner, clinician, industry or researcher, the Batten Brief is designed to keep you informed and connected as we work towards a brighter future for those impacted by Batten disease.
Stay tuned as the first edition of the Batten Brief is coming in the first week of July and every month thereafter.
The families and supporters on our current mailing list will receive it automatically. If you want to sign up to our mailing list to receive all updates (including Batten Brief and quarterly newsletters), please subscribe using this form:
https://bdsraaustralia.org/subscribe/
If you're unsure or if you want to subscribe only to the 'Batten Brief', please message us via facebook or at info@bdsraaustralia.org to get your details on the list.