A big shoutout and THANK YOU to all those who participated and fundraised for BDSRA Australia at both the City2Surf on 11th August and Beach2Beach on 25th August! We are so grateful for your effort and dedication!
From these two events, nearly $9,000 was raised!!
See [ here ] for our Grassrootz tally. We were convincingly #3 on the Beach2Beach leaderboard also.
Thank you to all the donors who generously helped us reach this AWESOME goal!
If you are interested in participating, putting in a team and fundraising in an upcoming funrun event around Australia, please let us know and we can assist in setting up the charity page for you!
For more events like this, visit our website [ here ]
Enjoy our photo gallery!
Alex ran in the City2Surf. It was a beautiful day and he enjoyed running in the race.
Alex aged 16, ran the race in 64 minutes!
We celebrate your extraordinary effort, Alex!
Alex pictured after the race with his devoted mum Julia and younger sister Emily (14) who is affected by CLN3 Batten disease (Juvenile Batten disease).
Alara recently diagnosed with cln6 Batten disease, with her older sister
Manda - "Our team shirts and costumes sparked conversation amongst the Beach2Beach community, allowing us to raise awareness"
Kylie - "The volunteers along the course were all encouraging and super friendly!"
Jen - "Knowing that we were walking for Alara was what spurred me along when Kylie and I were walking up those hills! ????"
City2Surf
Alex ran in the City2Surf. It was a beautiful day and he enjoyed running in the race.
Alex aged 16, ran the race in 64 minutes!
We celebrate your extraordinary effort, Alex!
Alex pictured after the race with his devoted mum Julia and younger sister Emily (14) who is affected by CLN3 Batten disease (Juvenile Batten disease).
Beach2Beach
Newly diagnosed Alara and her army of family and friends walked the Beach2Beach. Some photos and quotes from their entourage below.
Alara recently diagnosed with cln6 Batten disease, with her older sister
Manda - "Our team shirts and costumes sparked conversation amongst the Beach2Beach community, allowing us to raise awareness"
Kylie - "The volunteers along the course were all encouraging and super friendly!"
Jen - "Knowing that we were walking for Alara was what spurred me along when Kylie and I were walking up those hills! ????"
Justin, Haylei, Mackenzie and Alara - "What an amazing day! Everyone involved did such an amazing job. It's great to see people from all walks of life walking for different reasons.
We'll definitely be doing it again next year!"