We had a wonderful year creating awareness and fundraising this International Batten Disease Awareness Day. Here is a gallery of photos from our online campaign and various local events:
Online - Bounce4Batten campaign with reels and pictures of people bouncing
(just a selection of the many posts shared this year)
VIC - Epsom Primary School (Spark family)
"The day was a huge success, the year 4s especially just loved celebrating Zeph, it was an epic party! So many students and staff dressed in orange and long lines to purchase the merch - wrist bands and down balls. " - Epsom Primary School staff
SA - Battle in the Hills 2 - Mt Barker (McWaters family)
QLD - Little Scholars Stapylton & Rise Early Learning Surfers Paradise (Theo's family)
QLD - St Mary's School & Laidley (Emily's family)
"What began as a fun "pink day" at Emily's school 3 years ago, has now spread to the wider community, with businesses in the main street, other schools and the local council all getting involved. It means so much to know how much our community cares." - Jessica, Emily's mum (more about Emily & Laidley here)
WA - Spencer Park Education Support Centre (Gilpin family)
"Bounce 4 Batten Day is such a special one to our family, and every year it melts our heart getting photos and videos from lots of family and friends "bouncing", from far and wide it brings us together and raises awareness for this life shattering disease." - Amanda Gilpin
