As many of you may already be aware, our very own Vanessa Anderson was recognised on this year's 2023 King's Birthday Honours List and was awarded the Order of Australia (OAM) medal for her service to the community, in particular through Batten Disease awareness. This is a remarkable achievement and Vanessa is truly deserving of this incredible recognition.
Vanessa has been raising awareness and fundraising for Batten disease since her son, Jordan, was diagnosed with the late infantile Batten disease in 1996. Jordan passed away in 2002. Vanessa joined BDSRA Australia in 2000 and managed BDSRA Australia from 2001 until 2015. She has held various leadership roles since then and remains involved to this day, currently in the position of Public Officer of BDSRA Australia. Vanessa works in the disability sector for Life Without Barriers.
Vanessa says “I’m so thankful to those who nominated me for this recognition and for all the amazing people I’ve associated with, in the past 27 years. Jordan led me to a sector that I knew I would immerse in. And I’m fortunate to be part of a Battens legacy that will hopefully be rewarded with a cure. That’s worth supporting!”
We congratulate her and say a huge thank you for all she has done for our families and our organisation over the last 22 years.
To read more about Vanessa and her service to our Batten community, read the Coast Community News article here.
View the recording of the official Investiture Ceremony, where Vanessa was awarded her OAM medal - Ceremony 11: Wednesday, 20 September 2023, 10:00am
Photos below
Vanessa about to receive her medal, her name is called out and a summary of who she is provided
The medal is presented and pinned on
Photo together with the Governor, Her Excellency the Honourable Margaret Beazley AC KC
Proud Family photo with the Governor
The Order of Australia medal
The Vanessa we know & love!