It was a privilege to attend the Gordon Research Conference (GRC) for Lysosomal Diseases, from May 15-19 in Barcelona, Spain. GRCs are premier, international scientific conferences focused on advancing the frontiers of science through the presentation of the very latest, cutting-edge research.
This year’s theme was ‘Connecting Lysosomal Function to Pathophysiology for Innovative Therapies’. The program included a diverse range of speakers and discussion leaders from institutions and organizations worldwide, including numerous talks and academic posters from international NCL experts presenting some of the most recent (and largely unpublished) scientific and clinical data from the NCL field.
It was wonderful to spend time with fellow attendees Dr Angela Schulz (right), Head of the NCL Specialty Clinic at University Medical Centre Hamburg-Eppendorf, Germany, and Dr Frank Stehr (left), CEO of Germany-based NCL research and advocacy organisation NCL Stiftung, discussing the latest in clinical trials, scientific research and patient support resources. While at GRC, I was delighted to gift copies of BDSRA Australia’s children’s book Max and Abby to some colleagues, and have been humbled by the positive response and follow up requests for its translation into several languages (stay tuned for further details!).
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photo – Frank Stehr, Ineka, Angela Schulz[/caption]
photo – Frank Stehr, Ineka, Angela Schulz[/caption]