The Mickler family and author Dr Ineka Whiteman, our Head of Research and Medical Affairs (pictured here with her children), did BDSRA Australia enormously proud, raising awareness for Batten disease and childhood dementia, and speaking about the importance of sibling support.

For more information on ‘Max and Abby’, and to order your copy, head to our website: https://bdsraaustralia.org/Max-Abby

“A new children's book is helping families talk about rare, fatal Batten disease”