The Beyond Batten Disease Foundation (BBDF) will be hosting its next quarterly family research call next Saturday 6th August at 5am (local/AEST time).

This meeting will include information and updates on current research projects, including the Batten-1 study on Miglustat for treatment of CLN3 disease. A Phase 1/2 clinical trial is currently underway with Batten-1 in patients over 17 years, with plans to commence a paediatric study in 2023.

Please register via the link below to participate in the family call. If you are not able to attend, there will be a recording available after the meeting.

If you’d like to submit any questions in advance of the meeting you may do so by emailing info@beyondbatten.org

Registration link: https://us02web.zoom.us/.../tZApce6hqz8iG9LNodYcUm4pqF...