We are excited to announce that REGISTRATIONS ARE NOW OPEN  for the BDSRA Australia Family Conference, taking place from  Friday 31st October to Sunday 2nd November at the stunning Novotel on the Sunshine Coast.

Held in partnership and with crossover sessions alongside the 19th International Congress on Neuronal Ceroid Lipofuscinosis (NCL), held from 28 October to 1 November. This year also marks BDSRA Australia's 30th anniversary, and all our efforts are towards creating a weekend of connection, celebration, and knowledge sharing. Whether it’s your first conference or you've attended before, we’d love to welcome you and your family. Find our DRAFT PROGRAM, FREQUENTLY ASKED QUESTIONS and REGISTRATION FORM on our FAMILY CONFERENCE REGO PAGE. (below) Here's a little of what to expect:

• - Inspiring and educational sessions with clinicians, researchers, and international experts
• - Dedicated spaces for affected kids, siblings, parents and carers, currently affected or bereaved
• - Activities, family fun, and outdoor activities
• - Opportunities to connect, learn and share with others who have an understanding of the journey

And of course, time to rest, recharge and feel surrounded by people who understand. We're here to support you If you, your child/young person or your family have specific questions, needs or requests, we’re here to help – our team can provide one-on-one support to make sure you feel comfortable and confident attending the conference.

 Location: Novotel Sunshine Coast Resort, Queensland.

  Dates: 31 October - 2 November 2025

  Cost: Thanks to our incredible sponsors, we're able to cover your registration for the conference which includes 2 nights of accommodation and all meals as part of the program.

Places are limited, so we encourage you to register early to secure your spot and accommodation. More details on the draft program and support with travel subsidies will be shared soon. If you have any questions or need assistance with your registration, don’t hesitate to contact us through Liz at support@bdsraaustralia.org We can’t wait to see you there.

Register via our Family Conference website page: https://www.ncl2025.org/family-conference  

We warmly invite families and caregivers to join us for the main Congress at a significantly discounted registration rate. Please note: NCL2025 Congress will require separate registration to Family Conference registration - this will be available via the same portal on the website.

For any Family Representatives attending BDSRA Family Conference, if you wish to attend NCL as well, please register here for a 3 day add on ticket.