Our final family story for today, 9th June, International Batten Disease Awareness Day.

Liz, a bereaved mum who's daughter Matilda had CLN2, shares how Batten Disease cuts short the lives of affected children and our desperation as parents to find a cure for our kids, who deserve more than death sentence.

BDSRA Australia is dedicated to improving the lives and well-being of patients and families affected by Batten disease through family support, funding vital research, and advancing education and awareness.