25 May 2020
Bounce4Batten for International Batten Disease Awareness Day
As we approach International Batten Disease Awareness Day on 9 June, we are hoping you and your circle of friends can help us raise awareness for Batt...
12 May 2020
Batten Disease Research Grant Program 2020
BDSRA Australia is delighted to announce the launch of a new annual Batten Disease Research Grant Program for Australia and New Zealand.
6 Dec 2019
Latest research at the Australian Society for Stem Cell Research conference
Latest research by Wicking Dementia Centre at University of Tasmania
3 Dec 2019
Laureate Professor Ingrid Scheffer
New member of our Medical and Scientific Advisory Board, Laureate Professor Ingrid Scheffer AO MBBS PhD FAA FAHMS
20 Nov 2019
Professor Angela Morgan
New member of our Medical and Scientific Advisory Board, Professor Angela Morgan, NHMRC Practitioner Fellow.
18 Nov 2019
2019 AGM and lunch in Sydney
28 Oct 2019
Dementia strikes children too
BDSRA Australia is excited to announce that it will be working with Dementia Support Australia (DSA).
24 Oct 2019
NEW Family Support Officer
BDSRA Australia is excited to introduce Ms Laura Smith as our new Family Support Officer.
24 Jun 2019
Juvenile Batten Disease Study
Mutated CLN3 Protein May Indirectly Promote Abnormal Signalling Cascades Involved in Juvenile Batten Disease
23 Jun 2019
Medication available to Australian children via Life-Saving Drugs Program
Batten disease medication Brineura available to Australian children via Life-Saving Drugs Program.