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Current news

Earlier news

25 May 2020

News

Bounce4Batten for International Batten Disease Awareness Day

As we approach International Batten Disease Awareness Day on 9 June, we are hoping you and your circle of friends can help us raise awareness for Batt...

12 May 2020

News

Batten Disease Research Grant Program 2020

BDSRA Australia is delighted to announce the launch of a new annual Batten Disease Research Grant Program for Australia and New Zealand.

6 Dec 2019

News

Latest research at the Australian Society for Stem Cell Research conference

Latest research by Wicking Dementia Centre at University of Tasmania

3 Dec 2019

News

Laureate Professor Ingrid Scheffer

New member of our Medical and Scientific Advisory Board, Laureate Professor Ingrid Scheffer AO MBBS PhD FAA FAHMS

20 Nov 2019

News

Professor Angela Morgan

New member of our Medical and Scientific Advisory Board, Professor Angela Morgan, NHMRC Practitioner Fellow.

18 Nov 2019

News

AGM Reports

2019 AGM and lunch in Sydney

28 Oct 2019

News

Dementia strikes children too

BDSRA Australia is excited to announce that it will be working with Dementia Support Australia (DSA).

24 Jun 2019

News

Juvenile Batten Disease Study

Mutated CLN3 Protein May Indirectly Promote Abnormal Signalling Cascades Involved in Juvenile Batten Disease

23 Jun 2019

News

Medication available to Australian children via Life-Saving Drugs Program

Batten disease medication Brineura available to Australian children via Life-Saving Drugs Program.