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Current news

Earlier news

25 May 2020

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Bounce4Batten for International Batten Disease Awareness Day

As we approach International Batten Disease Awareness Day on 9 June, we are hoping you and your circle of friends can help us raise awareness for Batt...

12 May 2020

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Batten Disease Research Grant Program 2020

BDSRA Australia is delighted to announce the launch of a new annual Batten Disease Research Grant Program for Australia and New Zealand.

6 Dec 2019

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Latest research at the Australian Society for Stem Cell Research conference

Latest research by Wicking Dementia Centre at University of Tasmania

3 Dec 2019

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Laureate Professor Ingrid Scheffer

New member of our Medical and Scientific Advisory Board, Laureate Professor Ingrid Scheffer AO MBBS PhD FAA FAHMS

20 Nov 2019

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Professor Angela Morgan

New member of our Medical and Scientific Advisory Board, Professor Angela Morgan, NHMRC Practitioner Fellow.

18 Nov 2019

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AGM Reports

2019 AGM and lunch in Sydney

28 Oct 2019

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Dementia strikes children too

BDSRA Australia is excited to announce that it will be working with Dementia Support Australia (DSA).

24 Oct 2019

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NEW Family Support Officer

BDSRA Australia is excited to introduce Ms Laura Smith as our new Family Support Officer.

24 Jun 2019

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Juvenile Batten Disease Study

Mutated CLN3 Protein May Indirectly Promote Abnormal Signalling Cascades Involved in Juvenile Batten Disease

23 Jun 2019

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Medication available to Australian children via Life-Saving Drugs Program

Batten disease medication Brineura available to Australian children via Life-Saving Drugs Program.