BDSRA Australia has launched the ‘Living Well with Change’ resources. They include 3 PDF fact sheets that can be downloaded, printed and shared.

These resources are for:

-    Children and young people living with episodic and fluctuating rare disease disability (referred to as ‘students’) 

-    Families, carers, educators and support teams

See the resources: www.bdsraaustralia.org/livingwell

You will also find more information and helpful links. 

The resources can help: 

-    To start conversations

-    With planning for meetings

The resources form part of the Rare Disease Disability Toolkit.

Thanks to everyone who contributed to this project. We thank the people who participated in interviews and provided feedback. Your experiences and insights helped shape these resources.