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24 September 2026
First Comprehensive Clinical Recommendations for CLN3 Disease Care (as shared in Autumn 2026 Newsletter)
Read more
21 May 2026
Sharing Prof. Adam Vogel's story and his commitment to improving the lives of those with complex neurodegenerative conditions
13 May 2026
Federal Budget highlights urgent need for investment in childhood dementia clinics and research
12 May 2026
An update from Mark Hiscoke as he hikes through the four major trails in Hong Kong, raising much needed funds for BDSRA Australia
5 May 2026
International Batten Disease Awareness Day next month Tuesday 9th June 2026 #ForgetMeKnot
8 March 2026
Sharing Dr Lotta's story and her commitment to Batten disease research (as seen in the Summer 2026 newsletter)
27 February 2026
BDSRA Australia has secured philanthropic funding to establish the nation’s first coordinated National Batten Disease Clinic Program
15 October 2025
Thank you and update on the UNFORGETTABLE 'New World' concert in Sydney on 12th October 2025
11 August 2025
Registrations are open! Friday 31st October to Sunday 2nd November Novotel Sunshine Coast Resort, Queensland
25 July 2025
Special event - NSW The Concourse, Chatswood 12th October 2025 at 2pm Tickets on sale
9 June 2025
International Batten Disease Awareness Day Friday 9th June #ForgetMeKnot
28 February 2025
5 February 2025
18 January 2025
23 July 2024
All about Alanna Gayko's new book and how to purchase - with proceeds donated to BDSRA Australia
