Fundraising and Volunteering with BDSRA Australia

Together, we can make a difference to support children and families impacted by Batten disease. For 30 years, BDSRA Australia has been the leading organisation supporting children, young people and families impacted by Batten disease - a rare and devastating neurodegenerative condition.

With no known cure and limited treatment options, every dollar raised helps us fund vital research, provide critical family support, and advocate for better care and awareness across the country. Join us in making a meaningful difference. Your support brings hope.

BDSRA Australia receives no Government funding. Your support is vital to ensuring we can provide support for children and families impacted by Batten disease and that we can continue to invest in vital research to help find a cure. Get involved in one of our fundraisers, create one of your own, volunteer, or even just make a donation. Your support counts!

Upcoming Events and Fundraisers

BDSRA Australia

Families & Community

Recent Past Events and Fundraisers

Fundraising Ideas

Fun Runs

Will you run or walk for us? Make every step count by fundraising to help children and families impacted by Batten Disease.

No matter where you are in Australia, you can enter a running event and raise money for BDSRA Australia. 👉 Check out the other fun runs in your area that you can register for and help support BDSRA Australia. https://bdsra.grassrootz.com/

Bottles for Battens

Return & Earn NSW

Share our unique barcode below with family and friends, school and sporting groups in your community and encourage them to collect eligible containers and donate all or some of their drink container refunds to support our charity.

Facebook Campaigns – How to

Why create a Facebook fundraiser? It's quick, simple and it's effective!

• Start a post
• Click the 'More' (3 dots) button in the 'add to your post' section
• Click 'Raise Money'
• Select the charity 'The Australian Chapter of the Batten Disease Support and Research Association'
• Write why you are fundraising, it could be:
  - In lieu of a birthday gift
  - In memory of someone who has passed
  - To give us a boost before the New Year or Tax Time for BDSRA Australia to keep making a difference!
  
• Click the big blue 'Post' button and it will be live, reaching your Facebook community with your personal message and an easy user-friendly button to donate directly to BDSRA Australia!

If you have any questions or would like any assistance, please reach out to us!

Merchandise

**Merchandise is currently under development, please reach out to us if you are interested.

Wear your support and spark a conversation

When you purchase BDSRA Australia merchandise, you're not just buying a product, you're helping raise awareness and fund life-changing support for children and families affected by Batten disease. Every item sold contributes directly to our mission, helping us invest in research, family support services, and national advocacy. From apparel to accessories, our merchandise lets you show your support proudly and spread the word wherever you go.

Volunteer with BDSRA Australia

We're always looking for people to join the cause!

Volunteering for BDSRA Australia is a meaningful way to make a difference in the lives of children and families affected by Batten disease. Whether you’re helping out at events, supporting fundraising campaigns, or offering your professional skills behind the scenes, every volunteer plays a vital role in driving our mission forward. By giving your time and energy, you help raise awareness, fund critical research, and provide much-needed support to those navigating the challenges of this devastating condition. Join our community of passionate volunteers and be part of a cause that brings hope and connection to families across Australia.

Email info@bdsraaustralia.org to find out more.